Benefits Advice

Many people with ME/CFS are entitled to benefits such as ESA and PIP, but the path to getting them is not always as straightforward as perhaps it should be. Always do research and take advice before applying for benefits. Unfortunately those who take the forms at face value and 'trust in the system' often fail to get the benefits to which they are entitled.

ME/CFS-specific advice on benefits can be obtained from the national support groups Action for ME and the ME Association. Many people find the ME Association booklets on filling in the forms particularly useful. Also, the Facebook Group, The Facebook UK ME & Chronic Illness Benefits Advisory Group (see below) is another source of ME-specific advice.

Other sources of help and advice:


Leeds City Council Welfare Rights Unit

Free confidential, impartial advice and support on a whole range of welfare benefits; can help you to complete claim forms over the phone.

Leeds CAB

Leeds Citizens Advice Bureau offers free, confidential, impartial and independent advice and information on a wide range of subjects including benefits.


Disability Rights UK

A national charity providing information and campaigning on issues such as benefits, social care etc. They produce the Disability Rights Handbook, an invaluable guide to benefits and services for the disabled.

Benefits and Work

Comprehensive information on benefits.

A national charity “helping people when times are tough”. They provide ‘information and support to help people get back on track’.

Facebook - The UK ME and Chronic Illness Benefits Advice Group
You need to be a member of Facebook to join this group but you may find it is well worth joining as it is a very good source of peer infornation and support. (Just search for the name of the group on Facebook.)


This service describes itself as 'an award winning, non-profit organisation, providing specialised, expert advice and help on various welfare benefit claims; from advocacy and representation at court to guidance with forms for PIP, ESA & DLA.'

Disability Sanctuary

Support and information on matters relating to disability.

Make a free website with Yola